The woman headed into her bi-weekly blood draws with a comfortable familiarity. And to think, only a few months earlier she had cringed at the thought of needles. Her HCG values continued on the decline. By this point, the woman felt at peace with her circumstances. She had accepted what had happened, but there were still moments when she thought about how things could have been.
This week marked the celebration her 27th year. The scene before her did not match what she had originally envisioned her life to have been by this point in time. She would have had two more months left of her pregnancy and perhaps started working on a nursery already. Instead, she found herself working with her husband on their basement project.
As she laid tile and drilled holes, she couldn't help feeling relieved that she wasn't crawling around carrying a big belly along with her. It was certainly easier to accomplish the tasks without it. And she most definitely appreciated that she didn't have to deal quite yet with a crying baby and no sleep.
The woman had planned her course, but her steps were in Someone else's hands. In a way, she felt she had been given a second chance to enjoy and make the most of their time as a young couple, just the two of them. Not only that, but she had her own character flaws to improve in the meantime. She waited in anticipation to see how her 27th year would unfold. The air lingered with opportunity.
Showing posts with label HCG. Show all posts
Showing posts with label HCG. Show all posts
Saturday, May 7, 2011
Sunday, January 16, 2011
Part 33: Mile Stones
"It's four o'clock. You should call her," said the husband, eager to know the results from the woman's blood draw that day.
"I know the doctor said four, but I'll just wait a little bit longer to see if she'll call," replied the woman as she screwed in the white outlet plate. The couple had been working hard all day on their basement finishing project. The woman found it to be a good way to keep her mind busy with other things, rather than worrying about the things she couldn't control.
The next half hour flew by. The woman was hoping the doctor would have called her by now because then she would know for sure she wasn't interrupting anything. However, the doctor had assured the woman to call if she hadn't heard anything by four. Getting over her guilt complex, she grabbed her cell phone and jogged upstairs to make the call.
While waiting for someone to answer on the other end, the woman couldn't help but wonder what her results would be. She desperately wished to have the chemo treatments behind her, to move on to the next phase. It was funny how such a little number could have such a big impact on her life, and no matter how much the woman wished for it to be over, she had absolutely no control over any of the outcome.
"Alo?" answered the doctor.
The woman greeted back, trying to keep conversation on the topic and as short as possible. Both the woman and the doctor were on vacation, and she didn't want to impose any more than she had to.
"Well, I got your results back from the lab," the doctor began. "In discussing your results with the lab consultant, it turns out that the negative values for the HCG test were re-developed. Whereas before, a value less than 0.8 was considered negative, now any value less than 2.4 is considered negative. This week your value is at 1.3."
The woman pondered the meaning of this news. Two weeks prior, her value was at 2.0, which meant she had unknowingly already experienced her first negative result! Not only that, but since she had undergone a chemo treatment at that time and her value was still negative this week, she would no longer have to do any more chemo!
The woman didn't quite know how to feel. She had been waiting months for the day to finally be able to say with certainty that her HCG values had reached negative. Had the reference values for the test stayed at less than 0.8, her value that week would have still been considered positive and she'd be on another round of methotrexate injections. It was a welcomed surprise, but it was in some ways almost anti-climactic considering her real first negative had been two weeks prior. Even so, it was still a big mile stone in her recovery from gestational trophoblastic disease and a huge answer to prayer.
"I know the doctor said four, but I'll just wait a little bit longer to see if she'll call," replied the woman as she screwed in the white outlet plate. The couple had been working hard all day on their basement finishing project. The woman found it to be a good way to keep her mind busy with other things, rather than worrying about the things she couldn't control.
The next half hour flew by. The woman was hoping the doctor would have called her by now because then she would know for sure she wasn't interrupting anything. However, the doctor had assured the woman to call if she hadn't heard anything by four. Getting over her guilt complex, she grabbed her cell phone and jogged upstairs to make the call.
While waiting for someone to answer on the other end, the woman couldn't help but wonder what her results would be. She desperately wished to have the chemo treatments behind her, to move on to the next phase. It was funny how such a little number could have such a big impact on her life, and no matter how much the woman wished for it to be over, she had absolutely no control over any of the outcome.
"Alo?" answered the doctor.
The woman greeted back, trying to keep conversation on the topic and as short as possible. Both the woman and the doctor were on vacation, and she didn't want to impose any more than she had to.
"Well, I got your results back from the lab," the doctor began. "In discussing your results with the lab consultant, it turns out that the negative values for the HCG test were re-developed. Whereas before, a value less than 0.8 was considered negative, now any value less than 2.4 is considered negative. This week your value is at 1.3."
The woman pondered the meaning of this news. Two weeks prior, her value was at 2.0, which meant she had unknowingly already experienced her first negative result! Not only that, but since she had undergone a chemo treatment at that time and her value was still negative this week, she would no longer have to do any more chemo!
The woman didn't quite know how to feel. She had been waiting months for the day to finally be able to say with certainty that her HCG values had reached negative. Had the reference values for the test stayed at less than 0.8, her value that week would have still been considered positive and she'd be on another round of methotrexate injections. It was a welcomed surprise, but it was in some ways almost anti-climactic considering her real first negative had been two weeks prior. Even so, it was still a big mile stone in her recovery from gestational trophoblastic disease and a huge answer to prayer.
Monday, January 10, 2011
Part 32: Fault and Fuss
The woman closed her car door and walked towards the parking garage elevator. After waiting a minute or so, the down arrow above the entrance flashed, the doors opened, and she stepped inside for a solo ride. She was still waking up. Six forty-five was too early to be running around on any day, let alone on her day off, but it was for a good reason. She was scheduled for a blood draw, and hopefully today was the day her HCG result would be negative.
The elevator bell dinged as it reached the subway level. The scene that emerged from behind the parting doors left her a bit perplexed. A security gate was blocking the entrance to the main hall. Maybe they just haven't opened yet, she thought to herself. Maybe they open later since it's a day before a holiday. Lucky for her, she knew her way around and had a badge to get in.
The absence of people seemed odd to her, but she dismissed the irregularity and continued over to the main collection center. When she arrived, there was no one around. A sign displayed at the front desk which read: "Push button for assistance. Someone will be with you shortly." Something about pushing a strange button in the absence of anyone else made her a bit apprehensive, almost like she was being watched on candid camera, but she pushed it anyway and waited...and waited...and waited.
She was pretty certain the phlebotomists weren't too busy behind the closed doors considering there wasn't a single soul in the waiting room. Working up some courage, she decided to take a peek to see for herself what exactly was going on back there. To her unsurprised dismay, no one was on the other side. Why would they schedule me for a 6:45 a.m. draw if there wouldn't be anyone around? the woman thought to herself, still not realizing that she had actually misread her appointment schedule.
Determined to get her blood drawn, she walked over to another outpatient center across the street, thinking perhaps it would be open since it was connected to the hospital. Unfortunately, the attempt was just as successful as her first, and now she was becoming a little more agitated. To her luck, someone from the staff was able to direct her to where she could go, though she would need to drive there.
The woman walked back to her car, got inside, buckled-up, and drove a mile down the road to an affiliate hospital. Inside was a small outpatient office that also serviced the emergency room patients, so it was most definitely open that day. Relieved to finally accomplish her three-minute appointment with a needle (after her forty-five minute adventure), she left and headed home, stopping for a coffee on the way. She only hoped it had all been worth the fuss.
The elevator bell dinged as it reached the subway level. The scene that emerged from behind the parting doors left her a bit perplexed. A security gate was blocking the entrance to the main hall. Maybe they just haven't opened yet, she thought to herself. Maybe they open later since it's a day before a holiday. Lucky for her, she knew her way around and had a badge to get in.
The absence of people seemed odd to her, but she dismissed the irregularity and continued over to the main collection center. When she arrived, there was no one around. A sign displayed at the front desk which read: "Push button for assistance. Someone will be with you shortly." Something about pushing a strange button in the absence of anyone else made her a bit apprehensive, almost like she was being watched on candid camera, but she pushed it anyway and waited...and waited...and waited.
She was pretty certain the phlebotomists weren't too busy behind the closed doors considering there wasn't a single soul in the waiting room. Working up some courage, she decided to take a peek to see for herself what exactly was going on back there. To her unsurprised dismay, no one was on the other side. Why would they schedule me for a 6:45 a.m. draw if there wouldn't be anyone around? the woman thought to herself, still not realizing that she had actually misread her appointment schedule.
Determined to get her blood drawn, she walked over to another outpatient center across the street, thinking perhaps it would be open since it was connected to the hospital. Unfortunately, the attempt was just as successful as her first, and now she was becoming a little more agitated. To her luck, someone from the staff was able to direct her to where she could go, though she would need to drive there.
The woman walked back to her car, got inside, buckled-up, and drove a mile down the road to an affiliate hospital. Inside was a small outpatient office that also serviced the emergency room patients, so it was most definitely open that day. Relieved to finally accomplish her three-minute appointment with a needle (after her forty-five minute adventure), she left and headed home, stopping for a coffee on the way. She only hoped it had all been worth the fuss.
Monday, January 3, 2011
Part 30: Unexpected Blessings
The woman's pager rumbled against the desktop surface beneath her flat-screen monitor. More often than not, she forgot to bring it out of the side drawer, let alone actually turn it on, and when she did finally did, there would usually be at least three unanswered pages waiting for her from the days before. But today was different for no good reason. She turned to the coworker sitting beside her and excused herself as she reached for the little vibrating box. An unfamiliar number displayed on the screen, which all the more validated in the woman's mind the need to return the call.
She lifted the receiver and dialed the number. After two rings, a familiar voice answered from the other end. It was the woman's oncologist.
"Hello," the woman greeted back, a bit perplexed to be receiving a page at work from her doctor. True, they both worked for the same institution, so it was not an impossible notion, nor was it unwelcome. She just anticipated a more conventional means of doctor-to-patient communication, considering she wasn't even expecting anything in the first place since she just had her appointment the day before and had already started her sixth round of chemo.
"I have been speaking with the lab director about your HCG results," the oncologist began. "When it gets into the lower numbers, the results can get a little tricky. The main instrument that performs the HCG testing has a negative reference value of less than 0.8. Your HCG result when run on this instrument was a 2.0, so it is still positive. However, an alternative instrument that performs similar testing has a negative reference value of less than 2.0. On this instrument, your HCG was less than 2.0, which means it is negative."
"What is the difference between the two tests?" the woman asked.
"The first instrument detects more isoforms of HCG. However, the second instrument—the one you tested negative on—while it detects fewer, is what has been used in various literature discussing Gestational Trophoblastic Disease."
"So, what does this mean?" asked the woman.
"Well, we will see what happens in two weeks when you get your next blood draw. Depending on the result at that time, I may count this week as your first negative."
Her first negative!? The woman could hardly believe it! There was, of course, some odd stipulation: if her level remained at 2.0, the doctor would count it as negative, but if her value went lower, then she wouldn't. It had something to do with the fact that every person's "negative" is different; not everyone has a 0.0 level HCG. The woman wasn't sure what to wish for. A part of her wanted the level to go completely down to zero; remnants of the hormone made her feel tainted. However, staying at the same level meant no more chemotherapy shots, something equally or more so desired.
The doctor ended the phone call by giving the woman her cell phone number. She would be on vacation when the woman had her next draw, and in case the doctor didn't call her with the results, she wanted the woman to be able to get a hold of her.
The woman felt showered with blessings. Not only did she have a doctor who went above and beyond, but also she received an early Christmas present of half-negative. The unexpected surprise brightened her future outlook and the woman hoped for the best in the weeks to come.
She lifted the receiver and dialed the number. After two rings, a familiar voice answered from the other end. It was the woman's oncologist.
"Hello," the woman greeted back, a bit perplexed to be receiving a page at work from her doctor. True, they both worked for the same institution, so it was not an impossible notion, nor was it unwelcome. She just anticipated a more conventional means of doctor-to-patient communication, considering she wasn't even expecting anything in the first place since she just had her appointment the day before and had already started her sixth round of chemo.
"I have been speaking with the lab director about your HCG results," the oncologist began. "When it gets into the lower numbers, the results can get a little tricky. The main instrument that performs the HCG testing has a negative reference value of less than 0.8. Your HCG result when run on this instrument was a 2.0, so it is still positive. However, an alternative instrument that performs similar testing has a negative reference value of less than 2.0. On this instrument, your HCG was less than 2.0, which means it is negative."
"What is the difference between the two tests?" the woman asked.
"The first instrument detects more isoforms of HCG. However, the second instrument—the one you tested negative on—while it detects fewer, is what has been used in various literature discussing Gestational Trophoblastic Disease."
"So, what does this mean?" asked the woman.
"Well, we will see what happens in two weeks when you get your next blood draw. Depending on the result at that time, I may count this week as your first negative."
Her first negative!? The woman could hardly believe it! There was, of course, some odd stipulation: if her level remained at 2.0, the doctor would count it as negative, but if her value went lower, then she wouldn't. It had something to do with the fact that every person's "negative" is different; not everyone has a 0.0 level HCG. The woman wasn't sure what to wish for. A part of her wanted the level to go completely down to zero; remnants of the hormone made her feel tainted. However, staying at the same level meant no more chemotherapy shots, something equally or more so desired.
The doctor ended the phone call by giving the woman her cell phone number. She would be on vacation when the woman had her next draw, and in case the doctor didn't call her with the results, she wanted the woman to be able to get a hold of her.
The woman felt showered with blessings. Not only did she have a doctor who went above and beyond, but also she received an early Christmas present of half-negative. The unexpected surprise brightened her future outlook and the woman hoped for the best in the weeks to come.
Thursday, December 23, 2010
Part 29: Changing Seasons
The newly fallen snow crunched beneath their feet as the woman and her husband briskly crossed the street under the evening glow of the street lamps. She usually went to her appointments alone, but considering the road conditions that day, he volunteered to drive. Her mind flashed back. The last time he had accompanied her to an appointment, autumn leaves had just started falling off the trees and coats were still optional. It was hard to believe how much time had actually passed since then.
They sat in the waiting room together. The warm reality of it was enough to take her lingering chill off. She was glad he was with her again. For the last two months she'd been living in her own little world, one that could only be somewhat understood through her retelling to him upon her arrival home. It was true he didn't miss much, but something about his presence put her at ease. When he was with her, she didn't feel so alone.
Soon they were called back to the appointment room where they were shortly thereafter joined by the oncologist, who carried with her a calming radiance—something that wasn't learned in med school, but rather was an innate gift. Bi-weekly it instilled confidence in the woman; she could trust that every word from her doctor's lips was sincere, honest, and true.
"You need to drink more water," the doctor said.
The woman had no argument to that fact. She had no excuse either.
The doctor continued, "And your levels this week are at 2.0. This is very good! We will wait and see how things go in two weeks."
The woman was a bit discouraged. She was hoping for an early Christmas present, but according to the test, her value had to be less than 0.8 to be considered negative. Another round of chemo shots were in her immediate future. Count it all joy, she told herself. And she could. She was blessed to be following what the doctor said to be the textbook case. Her numbers had been dropping consistently every time. She knew others weren't as lucky.
"There is a saying in french," the doctor began, "'Patience et longueur de temps font plus que force ni que rage.'"
"Ummm...all I got out of that was patience. Patience what?" the woman replied.
The doctor chuckled and then translated: "Patience and time do more than strength or fury."
The woman had plenty of strength, fury, and certainly time. She would trek through all four seasons at least twice before she realized her dream. Patience, unfortunately, was harder to come by.
They sat in the waiting room together. The warm reality of it was enough to take her lingering chill off. She was glad he was with her again. For the last two months she'd been living in her own little world, one that could only be somewhat understood through her retelling to him upon her arrival home. It was true he didn't miss much, but something about his presence put her at ease. When he was with her, she didn't feel so alone.
Soon they were called back to the appointment room where they were shortly thereafter joined by the oncologist, who carried with her a calming radiance—something that wasn't learned in med school, but rather was an innate gift. Bi-weekly it instilled confidence in the woman; she could trust that every word from her doctor's lips was sincere, honest, and true.
"You need to drink more water," the doctor said.
The woman had no argument to that fact. She had no excuse either.
The doctor continued, "And your levels this week are at 2.0. This is very good! We will wait and see how things go in two weeks."
The woman was a bit discouraged. She was hoping for an early Christmas present, but according to the test, her value had to be less than 0.8 to be considered negative. Another round of chemo shots were in her immediate future. Count it all joy, she told herself. And she could. She was blessed to be following what the doctor said to be the textbook case. Her numbers had been dropping consistently every time. She knew others weren't as lucky.
"There is a saying in french," the doctor began, "'Patience et longueur de temps font plus que force ni que rage.'"
"Ummm...all I got out of that was patience. Patience what?" the woman replied.
The doctor chuckled and then translated: "Patience and time do more than strength or fury."
The woman had plenty of strength, fury, and certainly time. She would trek through all four seasons at least twice before she realized her dream. Patience, unfortunately, was harder to come by.
Tuesday, December 21, 2010
Part 28: Routines
It was the start of the woman's third month of treatment, her fourth oncologist appointment. By now, she had the routine down:
"Your value is 8.9," said the oncologist.
It was a 55 percent drop from two weeks before—still good, because it was dropping, but not yet negative, so it meant at least two more rounds of chemo. Luckily, by this point the injection schedule had worked itself out to be after she got off work, so she wouldn't have to make up time.
"I'm hoping for an early Christmas present next time," the woman said.
"Well, I can't make any promises," the oncologist replied. "When is your birthday?"
"February third."
"We might be able to make that happen."
It wasn't the best news, but it was good. The woman resolved to keep her hopes up for next time. She made her way over to her next stop to get her shot.
Count it all joy, she thought.
- Check in
- Verify her med list
- Take a pain survey
- Wait
- Get called in
- Get weighed
- Have blood pressure and temperature taken
- Wait some more
- Talk to the doctor
- Hear that she needs more chemo
- Walk over to the infusion therapy center
- Wait some more
- Get called in
- Have blood pressure and temperature taken
- Wait some more
- Get a shot
- Leave
"Your value is 8.9," said the oncologist.
It was a 55 percent drop from two weeks before—still good, because it was dropping, but not yet negative, so it meant at least two more rounds of chemo. Luckily, by this point the injection schedule had worked itself out to be after she got off work, so she wouldn't have to make up time.
"I'm hoping for an early Christmas present next time," the woman said.
"Well, I can't make any promises," the oncologist replied. "When is your birthday?"
"February third."
"We might be able to make that happen."
It wasn't the best news, but it was good. The woman resolved to keep her hopes up for next time. She made her way over to her next stop to get her shot.
Count it all joy, she thought.
Wednesday, December 8, 2010
Part 25: X-ray Vision
The woman stood outside the elevator catching her breath. Being fifteen minutes late on her end, she only hoped the doctor's office was maintaining their status quo. The arrival to the tenth floor couldn't come soon enough. She turned the corner. Luckily there wasn't a line. Her transition from the check-in desk to her appointment room was practically seamless—a first in her experience. Unfortunately, the woman still had to pass the time.
"I haven't as much seen the whites of the doctor's eyes yet today," said the clinical assistant.
Relieved to finally receive an honest estimate, the woman sat and waited, wondering what kind of news she would find out that day. It had been two weeks since her last appointment. The chemo treatments were pretty predictable and low key for her by now. Sure, she wasn't recovering back to her normal self as quickly, but she was making progress, and that's really all that mattered to her. Knowing her tendency to worry, she took some time to pray to calm her nerves. Then, she grabbed her cell phone and started reading through three years worth of text messages. I really need to bring a book next time, she regretted.
Just as she finished reading the last text, the oncologist apologetically entered the room, noticeably out of breath.
Like doctor like patient, the woman thought to herself.
There wasn't much to talk about considering her HCG results had not yet come back, but even if the levels hit zero, the woman discovered would still need to go through at least one more round of chemotherapy. The woman felt a bit discouraged. She was ready to move on to the next phase.
As if cued, the oncologist looked through the woman's eyes into her soul and said, "There is a light at the end of this tunnel. This is a bump in the road—a big one for you—but I am confident that you will be cured of this disease and you will go on to have more babies. I recently lost a patient to ovarian cancer. And do you know what she said of her situation? She said that it was a gift from God. I encourage you to think about how you might view what you're going through."
The woman swore this doctor had some kind of x-ray vision into her mind because the words pierced her heart. How does she know I've been feeling depressed about this the last few days and have been nursing a sour attitude? She was pretty sure she hadn't said or done anything incriminating, but somehow, the doctor knew.
The woman left the doctor's office in a contemplative mood and headed down to receive her first chemo shot of round four. She had plenty of time to think on the doctor's words—two hours twenty minutes, to be exact. She called her parents to kill some time.
"Your life experiences are a stewardship," her dad said. "Just like your time and your talents. What are you going to do with them?"
As she hung up the phone a nurse escorted her to her room. Her father's words still hung in the air. She had never thought of life that way. Sure, she was responsible to do good things with money, time, and talents, but life experiences? One cannot control life. Life just happens. But the more she thought about it, the more she realized either she could try to control her experiences, inevitably harboring anger and bitterness from her inability to do so, or she could let the Holy Spirit work through her, conforming her attitude to that of Christ, allowing Him to reveal His glory through her story of brokenness. If it were only that easy, she thought.
Her thoughts were interrupted by a knock on the door. A nurse entered the room handing her a piece of paper with a yellow Post-It note stuck to it upon which was written: "Beta HCG is Ok. Value is 20." Initially her lucky digit "0" was overshadowed by the "2" proceeding it. However, she caught herself before she went too far down that road. She reminded herself that it was an 83% drop from two weeks prior and the first time she had been in the two digits. Thank you, Lord, for six straight weeks of good news.
"I haven't as much seen the whites of the doctor's eyes yet today," said the clinical assistant.
Relieved to finally receive an honest estimate, the woman sat and waited, wondering what kind of news she would find out that day. It had been two weeks since her last appointment. The chemo treatments were pretty predictable and low key for her by now. Sure, she wasn't recovering back to her normal self as quickly, but she was making progress, and that's really all that mattered to her. Knowing her tendency to worry, she took some time to pray to calm her nerves. Then, she grabbed her cell phone and started reading through three years worth of text messages. I really need to bring a book next time, she regretted.
Just as she finished reading the last text, the oncologist apologetically entered the room, noticeably out of breath.
Like doctor like patient, the woman thought to herself.
There wasn't much to talk about considering her HCG results had not yet come back, but even if the levels hit zero, the woman discovered would still need to go through at least one more round of chemotherapy. The woman felt a bit discouraged. She was ready to move on to the next phase.
As if cued, the oncologist looked through the woman's eyes into her soul and said, "There is a light at the end of this tunnel. This is a bump in the road—a big one for you—but I am confident that you will be cured of this disease and you will go on to have more babies. I recently lost a patient to ovarian cancer. And do you know what she said of her situation? She said that it was a gift from God. I encourage you to think about how you might view what you're going through."
The woman swore this doctor had some kind of x-ray vision into her mind because the words pierced her heart. How does she know I've been feeling depressed about this the last few days and have been nursing a sour attitude? She was pretty sure she hadn't said or done anything incriminating, but somehow, the doctor knew.
The woman left the doctor's office in a contemplative mood and headed down to receive her first chemo shot of round four. She had plenty of time to think on the doctor's words—two hours twenty minutes, to be exact. She called her parents to kill some time.
"Your life experiences are a stewardship," her dad said. "Just like your time and your talents. What are you going to do with them?"
As she hung up the phone a nurse escorted her to her room. Her father's words still hung in the air. She had never thought of life that way. Sure, she was responsible to do good things with money, time, and talents, but life experiences? One cannot control life. Life just happens. But the more she thought about it, the more she realized either she could try to control her experiences, inevitably harboring anger and bitterness from her inability to do so, or she could let the Holy Spirit work through her, conforming her attitude to that of Christ, allowing Him to reveal His glory through her story of brokenness. If it were only that easy, she thought.
Her thoughts were interrupted by a knock on the door. A nurse entered the room handing her a piece of paper with a yellow Post-It note stuck to it upon which was written: "Beta HCG is Ok. Value is 20." Initially her lucky digit "0" was overshadowed by the "2" proceeding it. However, she caught herself before she went too far down that road. She reminded herself that it was an 83% drop from two weeks prior and the first time she had been in the two digits. Thank you, Lord, for six straight weeks of good news.
Monday, December 6, 2010
Part 24: Piece of Cake
"You are a piece of cake!" the oncologist said, her French-Canadian accent shining through. "You are a tree in a forest. You see the tree and I see the forest. My job is to get you through the forest."
The woman could not help but smile. She loved this doctor. There was always some kind of positive spin rolling off her tongue, a language the woman was not always the most fluent in.
The oncologist continued, "Not to minimize what you are going through. You have been through a lot, but I see the forest. Other trees are not as easy as you."
It was the prologue to one of the woman's most encouraging appointments yet. She sat in anticipation as the doctor turned the computer monitor in her direction. Her eyes locked in on the screen that posted her multiple weeks worth of lab results.
"Blood levels are good. Hemoglobin still a bit low, but going up. Liver function good. Creatinine still normal, but you need to drink more water," the oncologist reported.
They had gone through everything on the screen. What about my hormone levels? the woman thought. She looked at the doctor whose face wore an eager smile, like she had been saving the best news for last. The doctor scrolled down the screen while the woman leaned in for a better look.
119.
"This is very good!" the oncologist affirmed.
And it was good news. Prior to walking into that room, the woman had prepared herself for the worst—a rise in the levels marking the need to switch to a stronger, more aggressive chemo drug—and hoped for the best—levels to zero. The 95% drop to 119 from two weeks prior was really, really good news. She would still need at least another round of treatment since the weren't at zero, but these were the lowest levels yet, which was a great encouragement.
It's amazing what a good doctor and good news does to a person's patience. The woman left and settled in the waiting room once again, waiting for the assistant to bring her a new appointment schedule. Upon receipt of it began another series of unfortunate going-to-the-doctor annoyances. The scheduler had scheduled the appointments all wrong, the doctor had forgotten to write up her new prescription, the chemo shot took forever to get ready, and the pharmacy caught an inconsistency in the prescription which lengthened the ready time. Had it all happened at the last appointment, the woman would have for sure been annoyed, but oddly enough this time around she wasn't bothered a bit.
She walked down the corridor towards the parking garage elevator. Tears of joy stirred within her. While they never made it to her eyes, they filled her heart with hope of the weeks to come. She had come so far, and for that she was thankful.
The woman could not help but smile. She loved this doctor. There was always some kind of positive spin rolling off her tongue, a language the woman was not always the most fluent in.
The oncologist continued, "Not to minimize what you are going through. You have been through a lot, but I see the forest. Other trees are not as easy as you."
It was the prologue to one of the woman's most encouraging appointments yet. She sat in anticipation as the doctor turned the computer monitor in her direction. Her eyes locked in on the screen that posted her multiple weeks worth of lab results.
"Blood levels are good. Hemoglobin still a bit low, but going up. Liver function good. Creatinine still normal, but you need to drink more water," the oncologist reported.
They had gone through everything on the screen. What about my hormone levels? the woman thought. She looked at the doctor whose face wore an eager smile, like she had been saving the best news for last. The doctor scrolled down the screen while the woman leaned in for a better look.
119.
"This is very good!" the oncologist affirmed.
And it was good news. Prior to walking into that room, the woman had prepared herself for the worst—a rise in the levels marking the need to switch to a stronger, more aggressive chemo drug—and hoped for the best—levels to zero. The 95% drop to 119 from two weeks prior was really, really good news. She would still need at least another round of treatment since the weren't at zero, but these were the lowest levels yet, which was a great encouragement.
It's amazing what a good doctor and good news does to a person's patience. The woman left and settled in the waiting room once again, waiting for the assistant to bring her a new appointment schedule. Upon receipt of it began another series of unfortunate going-to-the-doctor annoyances. The scheduler had scheduled the appointments all wrong, the doctor had forgotten to write up her new prescription, the chemo shot took forever to get ready, and the pharmacy caught an inconsistency in the prescription which lengthened the ready time. Had it all happened at the last appointment, the woman would have for sure been annoyed, but oddly enough this time around she wasn't bothered a bit.
She walked down the corridor towards the parking garage elevator. Tears of joy stirred within her. While they never made it to her eyes, they filled her heart with hope of the weeks to come. She had come so far, and for that she was thankful.
Wednesday, December 1, 2010
Part 22: Anxious Thoughts
The woman watched as the nurse attached the needle to the syringe filled with chemo. The transparent yellow liquid glistened inside its plastic shell. It was the woman's second injection in her second round of chemotherapy and she was grateful that aside from some fatigue, watery eyes, muscle cramps, and occasional mild nausea, she had not experienced any overbearing physical side effects from the treatment thus far. Mentally, however, the anxiety of her last appointment still plagued her because the syringe in the nurse's hand seemed wider that day.
"Are you sure that is the same dose as last week?" the woman asked delving into the details of her traumatic experience from two days prior. "That syringe looks different from what I remember."
"Yeah. It's the same," said the nurse. The husband peered over to look the computer screen and concurred.
"Okay," replied the woman, still in need of convincing.
She stood up and turned her back towards the nurse who, shortly thereafter, slowly dispensed the yellow liquid into the woman's backside—so slowly, in fact, that it caused the woman internal alarm.
It's never taken this long for them to give me the shot. What's she doing?
"Um...are you almost done back there?" asked the woman, starting to become anxious while the needle held its ground. "This seems to be taking awhile."
"Almost, I'm just doing it slowly so that it doesn't sting."
“It usually hasn't taken this long, so I'm just trying not to..." The woman didn't finish her sentence. A tingling sensation began to flood her body and she fought the urge to close her eyes. "Umm...I feel weird."
"Just a second," said the nurse. "I'm almost done."
"I...I think I need to sit down or something," the woman replied trying to remain calm.
Instinctively she began to sit back down the the chair, the nurse scrambling to get a band-aid over the injection site. She turned pale and her skin became clammy. She felt like she was going to pass out. The nurse quickly closed a blood pressure cuff around her upper right arm and began to get a reading. The woman's blood pressure had dropped in half. She breathed deep, trying her best not to freak out, but she was scared. Luckily, in a few minutes, she was back to normal, though noticeably shaken up from the experience. The nurse ensured that her vitals remained stable and then freed the couple to go on their way.
It had been a shaky start to chemo round two, but on the bright side, her HCG levels had dropped by 90% since her first round—down to 2400! Prayers being offered up from around the country and around the world were notably gaining momentum. She only hoped that these next two weeks held similar results.
Wednesday, November 24, 2010
Part 20: The Substitute
The woman felt out of place amidst the sea of predominantly white hair. Not quite pregnant, not quite suffering from cancer—it was a queer state. It had been two weeks since her last visit. She had just come from her bi-weekly blood draw and now sat in oncology waiting to be the lucky one called over the intercom. Across from her sat an aged couple. They were both asleep.
Not very promising, she thought, hoping she'd have enough patience to make it through the wait.
A glance through a magazine and many daydreams later, she finally heard her name. The clinical assistant brought her back to a room where she took the woman's vitals and then promptly left, leaving her with the promise, "The doctor will be in shortly."
Either the assistant had made a good faith estimate on the time frame or she had lied through her teeth. The woman decided to take the silent advice from the elderly couple in the waiting room and pass the time by napping. She positioned herself in such a way as to be decently reclined, her feet hanging just off the edge of the bench cushion, but not so much that she wouldn't be able to quickly resume a somewhat normal seated position, were she caught off guard.
At last, the woman heard a knock. In walked a pot-bellied man in his sixties, the substitute doctor while her gynecologic oncologist was out of town. Generally pleasant, he seemed a tolerable replacement. It was obvious he didn't know much about her case. For the first five minutes he barely said a word to her and skimmed her patient notes. Great. I have some guy treating me that has no idea who I am or what's going on, she thought. He then proceeded to review her lab results. Blood counts and liver function looked good, but the HCG value, the one she cared the most about, had yet to post.
"Normally, if the initial run falls above the upper limit of detection, they will need to dilute the sample and re-run it," he said. "I'll just get started ordering up your next chemo dose while we wait."
"But don't you need to know what the actual value is before you go ahead and prescribe another round?" she asked. "What if the value is already at zero?"
"The likelihood of that is pretty slim. And even if it were at zero, we would still prescribe another round."
The answer slightly annoyed the woman. Then why am I even here in the first place? A call asking if I was okay would have sufficed, she grumbled to herself, the dollar signs multiplying in her head.
She glanced over toward the computer screen and noticed an error message pop-up. He had been sitting at the computer for at least ten minutes and was making comments to himself. Apparently the ordering system was not the most user-friendly. The longer it took him to place the chemo order, the more confidence she lost in his competence. Considering the personal impact this drug would have on her body, she was markedly concerned. Her mind raced to the close call at the hospital a few weeks back. She tried not to worry.
The doctor finally figured it out and had the woman get up on the exam table where he listened to her heart and pushed on her belly. She began to ask him all the questions that had been collecting in her mind over the last two weeks and she was disappointed by his answer. "You're getting out of my level of expertise," he said. "I'm not in gynecology, I'm in oncology."
Dejected, she decided to keep her mouth shut from there on out. Why do they have some guy who can't even answer my questions treating me? she wondered in frustration. He freed the woman to head to her next appointment—her first injection of chemo round two. "The girls will get you your schedule," he said and oddly ended with a question, "Do you have any kids?"
You've got to be kidding me. "Nope. This was my first," she said and walked away.
Not very promising, she thought, hoping she'd have enough patience to make it through the wait.
A glance through a magazine and many daydreams later, she finally heard her name. The clinical assistant brought her back to a room where she took the woman's vitals and then promptly left, leaving her with the promise, "The doctor will be in shortly."
Either the assistant had made a good faith estimate on the time frame or she had lied through her teeth. The woman decided to take the silent advice from the elderly couple in the waiting room and pass the time by napping. She positioned herself in such a way as to be decently reclined, her feet hanging just off the edge of the bench cushion, but not so much that she wouldn't be able to quickly resume a somewhat normal seated position, were she caught off guard.
At last, the woman heard a knock. In walked a pot-bellied man in his sixties, the substitute doctor while her gynecologic oncologist was out of town. Generally pleasant, he seemed a tolerable replacement. It was obvious he didn't know much about her case. For the first five minutes he barely said a word to her and skimmed her patient notes. Great. I have some guy treating me that has no idea who I am or what's going on, she thought. He then proceeded to review her lab results. Blood counts and liver function looked good, but the HCG value, the one she cared the most about, had yet to post.
"Normally, if the initial run falls above the upper limit of detection, they will need to dilute the sample and re-run it," he said. "I'll just get started ordering up your next chemo dose while we wait."
"But don't you need to know what the actual value is before you go ahead and prescribe another round?" she asked. "What if the value is already at zero?"
"The likelihood of that is pretty slim. And even if it were at zero, we would still prescribe another round."
The answer slightly annoyed the woman. Then why am I even here in the first place? A call asking if I was okay would have sufficed, she grumbled to herself, the dollar signs multiplying in her head.
She glanced over toward the computer screen and noticed an error message pop-up. He had been sitting at the computer for at least ten minutes and was making comments to himself. Apparently the ordering system was not the most user-friendly. The longer it took him to place the chemo order, the more confidence she lost in his competence. Considering the personal impact this drug would have on her body, she was markedly concerned. Her mind raced to the close call at the hospital a few weeks back. She tried not to worry.
The doctor finally figured it out and had the woman get up on the exam table where he listened to her heart and pushed on her belly. She began to ask him all the questions that had been collecting in her mind over the last two weeks and she was disappointed by his answer. "You're getting out of my level of expertise," he said. "I'm not in gynecology, I'm in oncology."
Dejected, she decided to keep her mouth shut from there on out. Why do they have some guy who can't even answer my questions treating me? she wondered in frustration. He freed the woman to head to her next appointment—her first injection of chemo round two. "The girls will get you your schedule," he said and oddly ended with a question, "Do you have any kids?"
You've got to be kidding me. "Nope. This was my first," she said and walked away.
Wednesday, November 17, 2010
Part 17: Weeping Willows
A noticeable increase of golden brown strands collected in her brush daily during that first week of chemo. They draped over her fingers like weeping willow branches as she pulled away her hands when washing her hair. While sitting in meetings at work she would notice strays laying on the table and brushed them away hoping no one noticed. The doctor had said the drug would not cause hair loss. She, however, noticed a contradiction to that expectation, which began almost immediately after starting treatment.
After discussing with her friends, she concluded that hormones instead were most likely the cause. Many gals mentioned losing large amounts of hair after delivering their babies—a time when HCG levels would be dropping. It made sense to the woman because, in a way, she had "delivered" something during her surgery and assumingly her hormone levels were dropping drastically now that she was on the chemo. To the woman, having a similar experience to a post-pregnant woman, yet being so far from that place, felt odd.
Her bleeding, while lessened, still continued. One of the many things she had looked forward to in getting pregnant was the lack of monthly cycles. Life had certainly dealt her an ironic hand. Two and a half months, she thought. When is this going to stop? After her last injection that week she noticed her flow likened to a medium period—less than what she experienced the week of her scare, but heavier than "normal." It bothered her.
Friday night rolled around. The woman and her husband decided to stay in for a movie night. As the evening progressed she experienced something she hadn't felt for awhile. The muscles in her lower abdomen contracted, similar to cramps during a heavy period. This, combined with the "abnormal" flow and the fact she had passed a few more small clots over the past few days, heightened her state of alarm. Taking precautionary measures, the woman folded up a towel and placed it beneath her just in case.
The intensity of the cramps increased during the movie, but she made it through crisis free. Crawling into bed that night she prayed for protection, fearing the worst: another trip to the hospital. She laid her burdens down, rested her head gently on the pillow, and quickly drifted off to sleep.
After discussing with her friends, she concluded that hormones instead were most likely the cause. Many gals mentioned losing large amounts of hair after delivering their babies—a time when HCG levels would be dropping. It made sense to the woman because, in a way, she had "delivered" something during her surgery and assumingly her hormone levels were dropping drastically now that she was on the chemo. To the woman, having a similar experience to a post-pregnant woman, yet being so far from that place, felt odd.
Her bleeding, while lessened, still continued. One of the many things she had looked forward to in getting pregnant was the lack of monthly cycles. Life had certainly dealt her an ironic hand. Two and a half months, she thought. When is this going to stop? After her last injection that week she noticed her flow likened to a medium period—less than what she experienced the week of her scare, but heavier than "normal." It bothered her.
Friday night rolled around. The woman and her husband decided to stay in for a movie night. As the evening progressed she experienced something she hadn't felt for awhile. The muscles in her lower abdomen contracted, similar to cramps during a heavy period. This, combined with the "abnormal" flow and the fact she had passed a few more small clots over the past few days, heightened her state of alarm. Taking precautionary measures, the woman folded up a towel and placed it beneath her just in case.
The intensity of the cramps increased during the movie, but she made it through crisis free. Crawling into bed that night she prayed for protection, fearing the worst: another trip to the hospital. She laid her burdens down, rested her head gently on the pillow, and quickly drifted off to sleep.
Monday, November 15, 2010
Part 16: Serenity
Hours passed as the woman sat in her hospital bed dressed in the usual with a twist: a flowered gown, blue robe, tan slippers and black wind pants. Might as well be comfortable if I have to sit here all day, she thought. She and her husband threw around jokes to lighten the mood and pass the time while they waited for the beginning of this new phase in the seemingly never-ending drama—the chemotherapy. It had been an hour since the woman last checked on her bleeding so she hopped off the bed and went into the bathroom.
“The nurse wants to weigh you again,” the husband said as she came back out.
“Umm…okay,” she replied. She stepped out of her room and onto the scale. Turning to the nurse she asked, “So, why are you weighing me again?”
“I just want to verify we have the right information in your charts. The chemo dosage is based off these numbers and I just want to make sure we have it right,” the nurse explained.
The woman watched as the number on the scale rose.
“Huh. I thought so,” said the nurse.
“What do you mean? That looks right,” the woman confirmed. “81 kilograms—179 pounds, just like two hours ago.”
“Your charts say you are 91 kilograms. Just looking at you, I see you’re a head taller than me, but you didn’t look to be 200 pounds.”
The woman was shocked. “Is this standard for you to make sure the patient looks as heavy as their charts say?” she questioned.
“Actually, no,” replied the nurse. “It just occurred to me as I was looking at you. Now, I know you’ve been waiting awhile to get this first dose of chemo. They were just about done verifying your dose, but with this new information, they’re going to have to start the process all over again so it will be a little longer.”
“Not a problem,” the woman assured. “I think I’d rather have the correct dosage. Thank you so much for being so observant. This is a God-thing.”
The woman gave her husband a mutually understood look. The implications of an incorrect dose were unknown to them, but they knew they had been spared from yet another pot hole in this journey.
A few more hours later, the nurse returned ready to administer the woman’s chemo shot. It was quick and virtually painless, nothing like the images she had conjured up in her mind when she envisioned receiving chemotherapy. True, they did have to use special blue gloves and the woman had to utilize a special spatter screen over the toilet, but that was the extent, though somewhat alienating.
And so it began. For an indefinite amount of time the woman would have to undergo bi-weekly rounds of this treatment. Week one consisted of every-other-day intramuscular (IM) injections of Methotrexate. On the off days, the woman would need to take a recovery vitamin called Leucovorin to help her body replenish what was lost due to the chemo. Week two was her recovery week as her body would work to build immune system back up in preparation for the process to begin all over again. They would also bi-weekly track her HCG levels to zero, after which point would begin the monthly draws for at least six months to ensure everything stayed that way.
Drifting off to sleep she thought about the long road ahead and a prayer came to mind:
God, grant me the...
Serenity to accept things I cannot change,
Courage to change the things I can, and the
Wisdom to know the difference
Patience for the things that take time
Appreciation for all that I have, and
Tolerance for those with different struggles
Freedom to live beyond the limitations of my past ways, the
Ability to feel Your love for me and others and the
Strength to get up and try again even when I feel it is hopeless.
Thursday, November 11, 2010
Part 14: Beating the Odds
The woman turned her head, closed her eyes, and breathed deeply as the assistant released the blue dye into her system. A warm sensation quickly passed throughout her entire body. Initially, the nerd inside her was intrigued by the biological workings happening in her circulatory system at that moment, but the intrigue soon subsided. The thought that it was happening to her was disturbing, so she tried not to think about it and instead imagined herself relaxing on a warm beach. In reality she was laying on her back in a cold room tucked under a stack of white hospital blankets making her way towards the buzzing machine that would soon document her insides. She moved closer and closer when, suddenly, it all stopped.
“We need you to remove your bra and underwear,” echoed a voice over the intercom.
“We need you to remove your bra and underwear,” echoed a voice over the intercom.
“Huh?” the woman replied, unsure if anyone could hear her as she was all alone in the room. She was confused by the request. This was a CT scan not a medical examination. She was pretty sure she could keep her clothes on.
“My underwear?” the woman asked the assistant entering the room and walking towards her.
“No—underwire. The underwire of your bra is causing interference,” said the assistant.
They had asked her at the beginning if she had any metal on and she had confidently assured them that she was good to go. Before she left her hospital room, she made sure all of it was gone. Apparently she forgot something.
The staff re-situated her and restarted the scans. It was painless. Her only complaint was that the room was freezing. The issued hospital gowns didn’t offer much warmth. The staff graciously offered her some warm blankets and she obliged. Then, they wheeled her back up to her hospital room where her husband and in-laws were waiting for her.
A few hours more hours of waiting passed and finally the CT scan results came back. Everyone held their breaths as they listened attentively to the doctors words: “The scans show no sign that the cells have spread. It is all contained within the uterus.”
A sigh of relief filled the room.
The doctor continued, “Based on these findings, we have diagnosed you with non-metastatic gestational trophoblastic neoplasia.”
The woman understood, but everyone else in the room looked a bit lost. The doctor translated, “Pretty much this form of the disease is invasive, but it’s not spreading and it’s not cancerous.”
More sighs of relief followed…and hugs…and tears…and smiles.
Finally, the woman could rest easy knowing that the cells weren’t attacking her brain, or any other part of her body for that matter. After two months of succumbing to what felt like the minutest odds, she was encouraged to know the odds were now moving back into her favor. Experience had taught her to mistrust potential good news, but she wasn’t going to let experience steal her joy in this moment. Thank you, Lord!
Tuesday, November 9, 2010
Part 13: Crimson Tears
She felt like a product on an assembly line. One by one the clinical assistants in radiology brought the patients into the dressing rooms, spouted off a memorized set of instructions, and handed them unflattering blue smocks to cover themselves. After changing, the woman went out to sit in the secondary waiting room, where she fit right in with the rest of the like-dressed patients. Shortly thereafter, she was escorted to a room to receive her ultrasound.
“I’m so sorry,” the woman apologized to the technologist, embarrassed by something she couldn’t control. It had been about an hour since she left the house for the clinic. The double-layer protection she thought would last a few hours had already lived its course and she was on the next round thanks to her husband who had packed extra pads against her wishes.
“I’m so sorry,” the woman apologized to the technologist, embarrassed by something she couldn’t control. It had been about an hour since she left the house for the clinic. The double-layer protection she thought would last a few hours had already lived its course and she was on the next round thanks to her husband who had packed extra pads against her wishes.
She lay on the exam table worried about how much blood she’d find underneath her afterward, while the technician maneuvered the ultrasound wand and diligently reviewed the images on the screen.
“Are you going to tell me what you see when you’re finished?” the woman casually asked.
“No. You’ll have to wait to discuss the findings with your doctor,” the technician succinctly replied.
Goodness. These technologists in radiology are way stricter than those in OB. Guess it won’t be the first time I’ve waited for answers.
The technician finished the scans and gave permission for the woman to leave. She met up with her husband and they walked over to the doctor’s office.
“The HCG results have come back and they have gone up again since your last draw five days ago,” the doctor began. “After reviewing the ultrasound, there seems to be re-growth of tissue in your uterus. We located a mass inside measuring about 3.5 to 4.0 centimeters and it seems to have grown into the uterine wall.”
A mass inside? the woman thought, shocked.
The doctor continued, “I took a look at your pathology results from the D&C and the cells did not have the appearance of choriocarcinoma, which is good. However, they have definitely started to invade into the uterine wall, which is a concern. We don’t want to do another D&C at this time because of the risk of possibly puncturing the uterus, which could cause uncontrollable bleeding and lead to hysterectomy.”
The word “hysterectomy” made the woman shutter.
“We want to preserve your fertility as best we can. The next step will be to get a CT scan to verify the cells have not spread to other parts of your body. We want to keep you overnight in the hospital to monitor your bleeding and make sure that goes down. And then we will also start you on chemotherapy treatments today.”
The woman felt like she was listening to the text book treatments she read on the internet and in online medical journals. The information was very familiar, but it wasn’t supposed to be her story. It was supposed to be some impersonal nice-to-know information that she didn’t have to worry about. But it was her story now, and somehow she would have to deal with it. All the times she had been given less than good news, she had been able to keep her composure, but this time was different. Though she didn’t know where else the crazy cells in her body may have gone, they had finally managed to get to her psyche and through her tears, she released the emotions that had been building inside her all day.
Sunday, November 7, 2010
Part 12: The Scare
The woman was running late…again. Three years out of college and she still couldn’t get this get-up-early-like-an-adult thing down. She raced into her company’s parking lot. Haphazardly she grabbed her keys, purse, computer bag, and the plastic Wal-Mart bag containing the blueberry muffins for her 8:00 a.m. meeting, and walked briskly to the door. Her hair had already started falling out of her pony tail, but she didn’t have time to care. As she stepped up from the pavement to the sidewalk she felt a gush of fluid leave her body.
That was weird, she thought and entered the building. While jogging up the stairs, a voice inside her suggested she should go check things out. I’ll just have to do it after this meeting, she rebutted. I’m facilitating so it will just have to wait until afterward.
Arriving at her desk, she quickly sat down to check her calendar for the location of her meeting. It was then that the moist feeling around her inner thighs won over her attention. Looking down she could see a dark red stain contrasting against her gray pants which in no way could be inconspicuously hidden. Oh my gosh! What do I do? she thought, trying not to panic.
The woman made her way back as carefully and quickly as possible to her supervisor’s desk. I hope she’s not at a meeting yet! As she approached the cube, she was relieved to see her supervisor sitting at the computer. Tears welled up in her eyes as the woman briefly explained her embarrassing situation. “I’ll be back as soon as I can,” she said, “but I need to go home and change.”
She fought off anxiety all the way home. The seven minute trip seemed an eternity. Luckily her husband hadn’t made it too far when he received her call to come home right away. His car was already in the driveway when she pulled in.
“I’ve bled all over!” she cried hurrying toward the bathroom.
“It’ll be okay, honey” the husband assured her.
The bleeding had soaked her entire pad and spilled over leaving her underwear and pants to do the rest of the job. She couldn’t hide her fear. There was too much blood and she was still bleeding. She called to her doctor’s office. The secretary took a message and said she would have the doctor call the woman back as soon as possible.
The woman began writing emails and making phone calls to keep her mind occupied in the short time while she waited. Prayer was a must in situations like these and she needed all she could get. She was just about to make a call to sister number three when the doctor’s office called her back. It was her nurse.
“The doctor wants you to come in right away,” the nurse said. “Can you get here in the next thirty minutes?”
“Of course,” the woman replied.
“I thought you’d say that. Head over for a blood draw, then go to radiology, then come straight over to the 12th floor. No specific times. Just get here. When you’re finished with one area, head right over to the next. We’ll get you in. And, honey, don’t eat anything except for clear fluids. We may have to do another D&C today.”
After confirming the details with her nurse, the woman got off the phone and started gathering her things for the trip over. Before leaving, she dressed herself with two pairs of underwear, a pad stuck to each one. This ought to hold me over for awhile, she thought.
The couple made the all-too-familiar trip back to the clinic. Her heart was heavy. She didn’t know what to feel or think. The thought of another D&C was worrisome and undesirable. Her eyes gazed out the car window up towards the sky. Keep me safe, Father. I’m scared and need Your help.
Friday, November 5, 2010
Part 11: Conversation with God
“What are you doing, God? How could you let this happen? And why me? There are so many women with unwanted pregnancies, but I wanted this, Lord! You know I want to be a mother! I have been waiting so long to start trying for a family and now I’m going to have to wait an indefinite amount of time longer! I have been planning and preparing as much as I possibly could for the last 3 1/2 years!”
My dear child, in your heart you plan your course, but I determine your steps.
“Well, my course was a pretty good one, God. We paid off all our debts but the house. I stopped taking birth control for six months to make sure there wouldn’t be any interference when we started trying. My husband finally came around without me nagging, which was nothing short of a miracle, and after three months of trying we finally got pregnant. We were all set. Our basement would be all finished by the time the baby arrived. Nine months and it would have been fine. But, no. You took it all away before anything even began. From the very moment of conception this was hosed and You knew this would happen before I was even born! Thanks for the warning!”
I love you, my child. I know the plans I have for you—plans for good and not for disaster, to give you a future and a hope. I cause everything to work together for good. In time, you will see.
“Well, it certainly doesn’t feel very hopeful right now. And logically I don’t see anything good about the fact that this whole thing keeps getting worse and worse. I could handle a miscarriage. I could handle getting surgery. But I can’t handle this never ending unknown of what is going on inside my body. I have absolutely no control over this. It’s just too much!”
Without Me, you can do nothing, my child. Come to me. You are weary and carry heavy burdens. Give Me your burdens. I will take care of you and give you rest.
“I’m scared, Lord. What if this gets even worse? What if these cells are spreading? What if I get cancer? What if I can never conceive again?”
Be strong, my child. Do not be afraid or discouraged. I am with you. Do not worry. Come to Me with your needs and My peace which exceeds anything you can understand will guard your heart and mind as you live in Christ Jesus. I will never leave you nor forsake you. Trust in Me.
“I'm sorry, Lord. I know You care. I know You love me. I believe You’re in control and that You will take care of me through all of this. Forgive me for my unbelief. Even though I cannot see exactly what You’re doing and I certainly don’t understand it all, I will trust You, Lord. Please give me faith to trust You more. Take my worries, my cares, and my life. Use it for Your glory. I need You so much. ”
Wednesday, November 3, 2010
Part 10: On the Rise
Beep!
Beep!
Beep!
Like an alarm clock buzzing after the third snooze, a muffled beep sounded from her lower desk drawer where her cell phone, nestled inside her purse, annoyingly reminded her every thirty seconds of what she had forgotten to do the night before. Of all the times I forget to charge my phone it has to be when I actually care about receiving a phone call, she grumbled to herself and continued working. That morning she had gone into the local clinic for her second week blood draw. She had been waiting all day for the doctor to call with the results and now was not the time for her phone to lose battery charge.
Her work phone rang. It was her husband.
“Hi honey,” she said.
“Hey. Have you heard anything yet?” he asked.
“No! It’s driving me crazy! On top of that, my phone is dying and I don’t know if there will be enough battery for me to actually hear what my doctor has to say!”
“I wonder what’s taking so long?”
“I know. Maybe I should just call over there and…”
The crippled ring of her cell phone interrupted her.
“Ahh! It’s the doctor. I have to go. I’ll call you back,” the woman said and hung up her work phone, clumsily grabbing for her cell phone to quickly answer the call.
The doctor barely got a word out when the woman interrupted, "I'm sorry. Do you mind calling my work phone? My cell phone battery is dying." She apologetically chuckled hoping the doctor would find the situation at least slightly amusing.
"Of course," the doctor replied.
Within seconds, the woman's work phone rang. After getting the niceties out of the way, the doctor got to the details. “Well, your hormone levels have risen to 20,000.”
While the woman had been hoping that this would not happen, in the back of her mind she knew that rising levels were a possibility with her type of the disease. Her suspicion of higher levels had increased over the past week. She had been feeling mild symptoms again, so the unfavorable news wasn’t a complete surprise. After sharing this with her doctor she asked, “So, what are the next steps?”
The doctor replied, “The first thing we want to do is have you wait one more week to verify that the levels are indeed going up.”
The woman was concerned about this. Fortunately or unfortunately, she had absorbed like a sponge all information on the internet about her condition, officially termed gestational trophoblastic disease (GTD). The fact that her hormone levels were rising meant one thing: the cells were still rapidly reproducing inside her. This left her vulnerable to metastasis, the spread of these cells to other internal organs, including her brain. The next logical phase in the treatment would be chemotherapy.
“What about the risk of this spreading? Wouldn’t it make sense to start chemotherapy to make sure it doesn’t start to spread or spread any further if it has already started?” the woman asked.
“I wondered that, too,” the doctor said, “and so I checked with my colleague, a gynecologic oncologist who is more familiar with this, and was told that the risks of waiting one more week are less than if we started chemo right away. Once we can verify that the levels are going up, we’ll know for sure we need to start treatment.”
The risks of waiting were less? To the woman, having out-of-control cells start spreading all over her body sounded pretty grim. What does that say about chemotherapy? she thought to herself.
Beep!
Beep!
Like an alarm clock buzzing after the third snooze, a muffled beep sounded from her lower desk drawer where her cell phone, nestled inside her purse, annoyingly reminded her every thirty seconds of what she had forgotten to do the night before. Of all the times I forget to charge my phone it has to be when I actually care about receiving a phone call, she grumbled to herself and continued working. That morning she had gone into the local clinic for her second week blood draw. She had been waiting all day for the doctor to call with the results and now was not the time for her phone to lose battery charge.
Her work phone rang. It was her husband.
“Hi honey,” she said.
“Hey. Have you heard anything yet?” he asked.
“No! It’s driving me crazy! On top of that, my phone is dying and I don’t know if there will be enough battery for me to actually hear what my doctor has to say!”
“I wonder what’s taking so long?”
“I know. Maybe I should just call over there and…”
The crippled ring of her cell phone interrupted her.
“Ahh! It’s the doctor. I have to go. I’ll call you back,” the woman said and hung up her work phone, clumsily grabbing for her cell phone to quickly answer the call.
The doctor barely got a word out when the woman interrupted, "I'm sorry. Do you mind calling my work phone? My cell phone battery is dying." She apologetically chuckled hoping the doctor would find the situation at least slightly amusing.
"Of course," the doctor replied.
Within seconds, the woman's work phone rang. After getting the niceties out of the way, the doctor got to the details. “Well, your hormone levels have risen to 20,000.”
While the woman had been hoping that this would not happen, in the back of her mind she knew that rising levels were a possibility with her type of the disease. Her suspicion of higher levels had increased over the past week. She had been feeling mild symptoms again, so the unfavorable news wasn’t a complete surprise. After sharing this with her doctor she asked, “So, what are the next steps?”
The doctor replied, “The first thing we want to do is have you wait one more week to verify that the levels are indeed going up.”
The woman was concerned about this. Fortunately or unfortunately, she had absorbed like a sponge all information on the internet about her condition, officially termed gestational trophoblastic disease (GTD). The fact that her hormone levels were rising meant one thing: the cells were still rapidly reproducing inside her. This left her vulnerable to metastasis, the spread of these cells to other internal organs, including her brain. The next logical phase in the treatment would be chemotherapy.
“What about the risk of this spreading? Wouldn’t it make sense to start chemotherapy to make sure it doesn’t start to spread or spread any further if it has already started?” the woman asked.
“I wondered that, too,” the doctor said, “and so I checked with my colleague, a gynecologic oncologist who is more familiar with this, and was told that the risks of waiting one more week are less than if we started chemo right away. Once we can verify that the levels are going up, we’ll know for sure we need to start treatment.”
The risks of waiting were less? To the woman, having out-of-control cells start spreading all over her body sounded pretty grim. What does that say about chemotherapy? she thought to herself.
Monday, November 1, 2010
Part 9: Perspective
“Well, at least we know that it wasn’t really a baby,” said the husband.
She wanted to resent him for the comment, but the woman knew that he was only trying to help. Biologically speaking, she knew he was right. The pathology report came back diagnosing them with a complete molar pregnancy, which meant that her egg had no genetic material inside so when it was fertilized, only the DNA from her husband was present. Had it been a partial mole, as the doctors originally suspected, at least they would have both created a little life, abnormal as it may have been.
The woman found herself grieving all over again. First it was the little life that never got to be. Now it was the little life that never was.
“But, it’s kind of like we lost a baby, right? I mean, didn’t you think about what it would be like to be a dad or what you wanted to name it?” she asked.
“Of course,” he said.
“And this whole time we’ve thought it was a baby, so we still lost a baby,” she insisted all the while trying to convince herself.
As she pondered the situation, her mind wandered off to the “what-ifs.” The cells in complete molar pregnancy could become invasive, spreading to other parts of the body, including the brain. They could even develop into choriocarcinoma, the malignant cancerous form of the disease. Twenty percent of women with complete moles experienced a recurrence of cell growth after their D&Cs. She tried to block these thoughts out of her mind, but no matter how many times she swept them away, they always found a way back in.
A few days later, the woman went in for some blood tests. It had been a week since her surgery. Now began the weekly blood draws where the doctor monitored her HCG (pregnancy hormone) levels. If things were progressing as they should, the levels should be dropping. Once the levels hit zero, she would begin the six month long wait to ensure they stayed that way. If they remained at zero, she would then get the clearance from her doctor to begin trying again. She could picture that day in her mind. I hope I get good news today, she thought.
Later that afternoon she received the call from her doctor with the results. Her levels were down to 15,000, a 255,000 point drop from the week before! She could hardly believe it—good news two weeks in a row. The light at the end of the tunnel was a little bit closer and shined a little bit brighter. Things were definitely on the up and up.
Saturday, October 30, 2010
Part 8: Renewed Hope
Her hair was up in a loose pony tail. Clothed in a flowered gown, blue robe, and tan slippers, the woman sat in the hospital bed, her husband in the chair beside her, and they waited. She stared out the window into the early morning darkness and admired the city lights. There was something peaceful about that time of day, while the city still sleeps. She took a deep breath, allowing divine peace to calm her in preparation for the upcoming surgery.
“Time to go,” the nurse said, peeking her head around the curtain that split the room in two.
The woman stepped out of bed and followed the nurse down the hall to the elevator. She wasn’t sure what to expect as this was not only her first surgery, but also her first ever hospital visit. They entered a triage area full of people on hospital beds separated by curtains and bustling with hospital staff. The woman was directed to her bed and she climbed in.
After answering a long list of questions for the nurses and anesthesiologists, she was wheeled into the operating room. It looked just like tv: white walls, lights everywhere, people with masks dressed in blue, IVs and monitors. The decisiveness and speed at which the operating room staff moved was like a well oiled machine.
“We’re going to give you some oxygen now, so just breathe deep,” one of the staff said as they placed a mask over the woman’s mouth and nose.
She took about three breaths.
The next thing she realized, she was in the recovery room listening to a nurse talk on the phone, “She’s awake and stable. Ready to come back upstairs.” An escort came by shortly thereafter to wheel the woman back up to her room. When she got back, she found her husband sitting in the bedside chair with his laptop. It was a familiar sight and it comforted her.
Maybe it was the drugs, maybe it was the free cranberry juice, or maybe it was the knowledge that her body was finally rid of the harmful tissue that had been plaguing her for the past month. Whatever it was, she felt so good—better than she had in weeks. She wouldn’t find out the results of the biopsy for another few days, but still, a renewed sense of hope filled her heart and she was grateful that this was all finally coming to an end.
Thursday, October 28, 2010
Part 7: Mystery Unveiled
One thing the woman learned quickly when going to doctor appointments is that waiting rooms are accurately named. Nothing makes bad news worse than having to wait 1 ½ hours to hear more of it. Luckily, her husband was a geek who had a major work project due that week, so he had brought his laptop along that day. They sat in the waiting room devouring as much information as they could about molar pregnancies to pass the time.
Symptoms: nausea/vomiting—check, vaginal bleeding—check, “snowstorm” appearance on ultrasound—check
They were finally called back to a room to speak with the surgical gynecologist who would be taking over the woman's care. The doctor was young, approachable, sensitive, knowledgeable...and female—everything that caused the woman to take an immediate liking to her. She educated the couple about the disorder. Inside the woman's uterus abnormal cells from the fertilized egg were producing tissue resembling a bunch of grapes. Due to the cancer-like, invasive nature of these types of cells, the doctor highly recommended an outpatient surgical procedure called a dilation and curettage, or D&C. This is where the contents of the uterus are suctioned out and the inside of the uterine wall is scraped in an effort to remove all of the abnormal cells. In all reality, there was not much discussion about alternatives. At 5:45 a.m. the next morning they were to report to the hospital admission desk.
Though much had taken place over the course of the whole day, to her it all seemed to be moving so fast. The woman didn’t have time to think through all of the risks of the disease she carried in her body or the procedure she was having the next morning. Three weeks of mystery had finally been unveiled, and there was no sense dragging it out any longer. She was glad that there was finally something she did not have to wait for—the surgery. The surgery would be the first step to ending this horrible month-long nightmare.
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